Archive for the ‘My Joys and Challenges’ Category

Need to trumps want to.

Wednesday, September 1st, 2010

So often the items we need to do trump our want to do items. I have been very fortunate that many of the need to do things which have kept me away from writing on Becca’s Dream were also things I desired very much to do. I had blast and wish I could revisit some of the activities I was able to engage in the past few months. Especially the month I spent helping my daughter and grand daughter while my son in- law was deployed. How I would love to be out there with that little munchkin while she is growing.

While I was visiting them I made a friend named Jessie. It was she who invited me to water aerobics. It has taken months since I came back home to make the time to find a program here but I now have water aerobics four days a week to also take up my time and squish everything else I have to  do into a more compact time frame. Jessie also writes on the net under the name “Just Jessie” sorry I don’t have the address available. Hey Jessie hope you see this; thanks for taking me along and being a friend.

Back to the mundane ie folding laundry: yippee!  NOT.  Will try to write short and often and let you know what is going on with Becca; especially the saga of the broken ankle.

Red Light, GreenLight

Friday, February 12th, 2010

Do you remember that childhood game?

I do!

When I was twelve my brother counted up all the kids on our street. In one block, on just our side, there were fifty three of us from birth to eighteen years old. Back then there were no fences and the backyard ran from the top to the bottom of the block. We had a six house stretch of lawn in which to play red light green light, red rover, kick ball, dodge ball or anything else we could dream up with fifteen to twenty players per game. The best games were hide and go seek at twilight. With porches on the fronts and backs of all the houses, alley ways in between, the car lot on the corner and a huge ten foot high bushy hedge running three quarters of the block  at the back of the yards there were hundreds of places to hide. We only had three restrictions; you could not cross the street, you could not go around the corners and you could not go inside the houses.  What a way to grow up. I can still hear my mother’s solution for sibling squabbles ringing in my ears “Go outside and play! You are driving me crazy!” We were more often than not outside.

Wow what dredged up these forty year old memories?  Becca did.  I picked her up today to take her to FTEA for her equine therapy session.  Two blocks down the road she pipes up with “Nancy, the green light means go”.  So of course I ask about red lights. Then remembering that she had mentioned playing red light /green light the night before my brain fires and catches on to the thought “ohhh teachable moment”.  So off goes my mom/chauffeur hat and I plunk on my mom/speech therapist hat. I have a twenty minute drive ahead of me with stop lights every five blocks a topic initiated by my daughter (unheard of) and of such interest to her that she did not clam up the minute I tried to engage her  in conversation. Trust me I got all the mileage I possibly could including the concepts of top middle bottom, left center right, continuity of where the red and green lights are placed (you see we are not sure that Becca is not color blind) even engine revving tire squealing and brake noises. It actually was a fun drive.

FTEA helped us out by ending today’s session with a game of “Whoa” & “Walk on” to red and green cards. Before coming home we stopped at Costco. The second time I stopped the cart Becca pipes up again with “red light” and again with “green light” as I started to move again. Then came the request to play red light /green light. So I took off the mom/therapist hat and pulled out my plain old mom hat, true I had to dust it off  (it was thick with dust because I haven’t used it in so long) but I plopped it on my head and began to play and laugh. We had a good time stopping and going while calling out red light /green light all through Costco to the amusement of many of the customers and sample ladies.  Two women we know caught us playing.  I think they were more than just amused they actually enjoyed seeing our game. My heart was thrilled to be interacting with my daughter and having fun doing so.

Now only a ??? days to wait.

Thursday, February 4th, 2010

??? days left and guess who is getting scared?  Not Becca! I have been thinking about having to care for an animal which will likely be as big as my daughter. Just thinking about it is overwhelming. My mom always said having a dog is like having a two year old forever.  Becca’s baseline is about three years old. Whoa boy! Two beings the size of small adults and with toddler minds. Yeah!

Following is something I wrote tonite for the 4paws family network decided to share it with all of you as well.

 

OK everyone think:  “Whistle a Happy Tune” from The King And I

 

(Mom’s verse)

When juggling all the balls

that make up my crazy life

I think about adding a dog

And I just want to run and hide

 

How will I ever manage

To control a dog that huge

can I ever pass certification?

 Will my disaster make the six o’clock news?

 

My daughter needs this S.D.

Of this I am convinced

But will I survive, so disorganized

Oh God is it to late to quit?

 

Oh someone give me a hug

And the strength to carry on

For August here I come

The days and clock just keep ticking on.

 

(Child’s verse)

When ever I feel afraid

I think of my new friend

And make my funny noise

And (s)he is there to calm me down

 

When walking in the mall

I no longer get lost

My tether keeps me tied

And safe beside my mom while she shops

 

The result of this connection

Is very strange to tell

For while I get independence

My mom gets some as well.

 

So , I  travel with my S.D.

And my S.D. watches me

And life is getting easier

Because I have a friend who walks with me.

 

 And Yes I write when I need to get something out of my system.

And Yes I am stressing about being disorganized and the size the SD will need to be to tether my adult daughter.

And Yes I am trying to stay upbeat thus the catchy tune and the second verse that was actually written first. Figured I  might as well be real and write the mom’s verse too.

Since my hubby laughed out loud when I shared it with him I’ll be brave and share it with you.

Nancy Tally

August Hot Dogs 2010

Hello Everyone!

Saturday, November 28th, 2009

Becca is still highly excited about her doggie in training.  She carries the pictures I printed for her literally 24/7.  Sleeps with them and takes them everywhere. Occasionally she sets the book down and then forgets where it is. Everything  stops till we locate it for her once again. 

My apologies for leaving you out in the dark for so long. I have been down with an acute respiratory illness for two and a half weeks.  I have not seen anything that bad since Becca had pertussis in 1990.  Thankfully she had a much milder illness this time only lasting five days and not one tenth as violent as what I endured.  This past week (as I have been regaining my strength)  has been spent catching up on the never ending sport of paper work. You all know the drill; bills, medical forms,  junk mail, etc… 

Things are progressing well towards our August due date.   November 6th I had the chance to share about 4 Paws for Ability with our parent support group. We had a woman promise a large kennel for us, another friend said I could put the money I owed her for a plane ticket towards our current needs, a third friend did all the leg work for those eighty shirts I need to help train the dogs to seizure alert so when a good deal came along at Joanne Fabrics I  knew it was the best price available and moved on the sale. Would have missed that oportunity with out Jeanne’s help because I was way to sick to even start looking myself.

Today I had a phone call. There is local family who had decided a couple years ago to pool the money they would spend on small gifts for extended family members and choose a cause/charity to give it to each year. They have chosen to help us!  We will put the money towards fencing the yard this coming spring so it will be ready for our service dog. 

God is Good and the love of his people overwhelming.

I am still very tired will write again.

Comments on August posts

Saturday, October 17th, 2009

I was just reviewing the posts and thought to update you on two items.

When Becca was in the hospital, 8-1 post, we found out that the pharmacist on duty was a friend. He filled the order for 3000 mg of Keppra for Becca, which was being sent to the ER, and knew she was in trouble. We are grateful for his on the spot prayers for her.

In missing Becca not the noise I had voiced concern about the new style of camp this year. After talking with Becca and her friends, and at length with the camp director we are all of the opinion that this change is a very good thing.  Becca had a blast! Even more so than in previous years. One of the many problems we have faced through the years is not having places were there are roll models of appropriate behaviors for a given situation. When you are consistently isolated to a group of people who do not know any better than you, it is harder to grow in social skills.  Well, the handicapped group was not the only group being challenged. The ” normal” kids were growing this summer as well. The director tells of one little girl who had the most objections to having the handicapped group at camp. At first it was easy to be horrified by this child’s attitudes. But as the story unfolds and I heard of the child’s fears of the unknown of those people who were so different than her my heart softened. As I was told of her initial attempts at swallowing her fear and finding the courage to reach out to someone who made her feel totally uncomfortable I found myself cheering for her. It was utterly delightful to know that by the end of camp she was championing her new friends and actively seeking to include them in the days activities. 

Oohh(sigh) that all prejudice in this world could be so easily overcome. Walcamp has been there for years supporting all kinds of kids. This new venture, though very scary even to us, is going to be a blessing on so many levels. May it’s growing pains be few.

I found them! I found them!

Saturday, October 3rd, 2009

I was trying to stay calm. I knew I had put my SD card in a place I would find it but was afraid I had opened the item while traveling and dropped it in the dark at a McDonald’s in PA. After a week had gone by, during which I had unsuccessfully looked everywhere, I was becoming more convinced that it was gone. Yesterday, I pulled out the mortage bill to pay it and low and behold out tumbles my SD card. I was right about one thing; I did put it where I had to find it relatively soon. 

We took a trip to visit Becca’s grandmothers. Her paternal grandmother is 99 years old!  Those pictures were a great loss to me as I didn’t know if we could ever replace them; our time with her is precious and getting limited.

Becca, Daddy, Grandma, Auntie & Cousin

Becca, Daddy, Grandma, Auntie & Cousin

  After visiting here for a few days we went down to New Jersey to visit with Becca’s maternal grandmother who was celebrating her 75th birthday. Unbelievably we managed to pull off a surprise party. She  knew we were taking her out but had no idea where or that there would be more people there than just her kids.

Mommy, Grandma & Becca

Mommy, Grandma & Becca

 

Kisses Goodbye

Kisses Goodbye